CNN Health: Mysterious disorder a ‘life sentence’

It’s been just over a year since Lori’s article appeared on CNN.  CNN iReporter Lori Raines administers the Facebook page Neuronauts, a dystonia support group. She says raising awareness is the key to finding better treatments for the movement disorder and, eventually, a cure.

 

 

(CNN)Lori Raines and her mother were hunting for deals at post-Christmas sales in 2009 when Raines' left leg involuntarily turned inward and an excruciating pain shot through it.

At first, she thought the pain was the result of a 2005 operation to fix a herniated disc in her lower back.

It wasn't.

As a massage therapist, yoga instructor, aspiring artist and mother, she could not afford to lose mobility. But within a couple of days, Raines was practically bedridden.

She began taking a number of medicines and steroids that changed her personality, caused friends to abandon her and destroyed her marriage.

But nothing stopped the pain or involuntary movement in her leg.

"I lost everything," she says.

Finally, eight months and about 30 doctors' opinions later, she was diagnosed with dystonia, a little-known but the third most common movement disorder.

"If you have something invisible going on, then it's all subjective," the 41-year-old says. "Dystonia doesn't show up on MRIs and it doesn't show up on tests."

Raines hasn't been able to work, slowly watching dystonia spread from her legs to her arms to her neck. Forced to get around on crutches or in a power chair, the former dancer is mostly confined to her Hendersonville, North Carolina, home.

"You don't die from dystonia," she says. "But you want to. It's sort of like a life sentence, as opposed to a death sentence."

 

Raines' struggles with dystonia first appeared in 2009 when her left leg began involuntarily turning inward. It is now a permanent symptom.

 

Cervical dystonia is the most common form and causes Raines' neck muscles to contract uncontrollably. 

Dystonia flare-ups cause Raines' feet to contract, keeping her from walking and forcing her to use crutches or a power chair.

Raines also has blepharospasm, a form of dystonia that causes the eyelid muscles to contract uncontrollably.

 

 

Dystonia is often cloaked in mystery and can take years to diagnose. In most cases, dystonia's cause is unknown, and there is no cure. Patients and medical professionals agree dystonia awareness lags far behind other movement disorders such as Parkinson's disease and multiple sclerosis.

Dystonia is "characterized by sustained or intermittent muscle contractions causing abnormal, often repetitive, movements, postures, or both," according to the article "Phenomenology and classification of dystonia: A consensus update," published this year by an international panel of dystonia researchers.

Dystonia can be divided into primary and secondary types, says Dr. H.A. Jinnah, director of the Dystonia Coalition and professor in the department of neurology, pediatrics and human genetics at Emory University. It is difficult to quantify exactly how many people suffer from it.

 

There are no drugs made specifically for dystonia patients. Raines endured numerous side effects from the wide-range of medications she took during 2011.

 

Under the National Institutes of Health guidelines, Jinnah says pure or primary dystonia is identified as a rare disorder, but mixed or secondary dystonia occurs frequently. Combining the two classifications makes dystonia a common disorder, he says, "because we would have to include cerebral palsy, Parkinson's disease and a whole load of others."

There are two common treatments for dystonia; neurotoxin injections, such as Botox, and deep brain stimulation, which requires an operation to place a neurostimulator in the brain. The stimulator sends electrical currents to parts of the brain that control muscle movement.

Certain forms of dystonia have been linked to genetics, environmental or brain damage. But scientists are still trying to determine exactly what causes the disorder.

"What all of us would like, and most especially our patients, is a medication so that they don't have to get injections or brain surgery," Jinnah says. "That requires that we know something about the cause."

Cervical dystonia, which causes the neck and sometimes the shoulders to contract involuntarily into uncomfortable positions, is the most common form.

Cris Rogers

Cris Rogers

Cris Rogers, 46, says he believes he developed cervical dystonia due to birth complications. He didn't begin experiencing symptoms until his teens and wasn't properly diagnosed until he was 36.

"Even world-class orthopedists missed this diagnosis by a country mile," he says.

Rogers calls having cervical dystonia a "gift" compared with other forms out there. He is able to treat it with quarterly Botox injections.

"There is an emotional aspect to dystonia that people don't get," he says. "You feel hopeless."

Yet there is no guarantee the Botox will always be an effective treatment.

"If you have relief and the symptoms return, that is a level of pain that is hard to describe," he says. "Because you know what it is like to feel good."

Rogers is a member of the Facebook page Neuronauts, a closed dystonia support group with about 650 members that Raines created in 2012. Raines says she encouraged the Neuronauts to post their stories on CNN's iReport in honor of Dystonia Awareness Month.

"We are isolated as a whole," she says of the group and people who suffer from dystonia. "We have no support. We have no money. We're just trying to keep ourselves alive."

 

Michele Weber

Michele Weber

Michele Weber, a mother of two who has a Ph.D. in political science, is also a Neuronauts member. Like Raines, she has multiple forms of dystonia that affect her neck, limbs and facial muscles.

She began experiencing symptoms as a child and started seeking medical opinions in her 20s. But Weber says she wasn't diagnosed until her 40s.

"(Dystonia) is devastating to people socially and economically," the 47-year-old says. "We're not the glamour illness. We don't have the celebrity spokesman."

Weber's peers are often shocked to hear she works as a financial adviser, an "assumption" that her visible symptoms are indicative of "lesser intelligence," she says. She bucks her natural tendency to keep personal issues private because she believes raising awareness is key to advancing treatment and a cure.

"Until I know that everybody is diagnosed or have adequate treatments, I'll keep being a big mouth about this," she says.

Like Rogers, Weber considers herself fortunate because she has her husband's support and quality care from a doctor she trusts. Her symptoms constantly limit basic abilities such as using her hands and legs.

"I am disabled — no more, no less," she says. "All of our abilities are temporary."

All three agree that the medical community's lack of understanding of dystonia contributes to the public's lack of awareness.

 

Dystonia's wide variety of forms has caused a lag in research and treatment, says Dr. Mahlon DeLong, medical director of theDystonia Medical Research Foundation and professor of neurology at Emory.

"There was a period of time in the '50s, '60s and '70s when physicians thought this could be psychogenic," he says, meaning it originated in the mind. "It was a very unfortunate time."

DeLong says that the medical community now understands dystonia's symptoms are not psychological and that the recent discovery of new genes creates opportunities for advancements in treatment — and may lead eventually to finding a cure.

"We're beginning to understand the molecular disturbances in the brain," he says.

Identifying the genes that may be involved in dystonia will allow researchers to learn about their different mutations, Jinnah says. These findings will then enable scientists to understand better how the mutations alter patients' biochemistry and how the mutations affect the brain's normal neurological functions.

But DeLong also says that not all forms of dystonia are genetic and so gene mapping is not necessarily a Rosetta stone for grasping dystonia.

"I think we're on the edge of discovery and better therapy," DeLong says. "Some of the new approaches that are coming out will prove very affective for dystonia."

 

Raines says the pain from dystonia, which is constant, fluctuates between four and eight on a 10-point scale. Axial dystonia, a subform of generalized dystonia, assaults Raines' abdomen, chest and back.

More funding and research cannot come soon enough for Raines, who says her pain is constantly fluctuating between a four and an eight on a scale of 10.

She can still drive short distances, getting out about three times a week to go grocery shopping and take her son to school. In August, she will enter her first art show since being diagnosed with dystonia. But she devotes the rest of her time to supporting and encouraging fellow Neuronauts.

She says people diagnosed with dystonia need to vocalize what they are going through.

"My background is all about expressiveness and being creative," she says. "The more you can express yourself, the more healthy you are on a cellular level."

By Matthew Casey, Originally published by CNN here

http://www.cnn.com/2013/06/28/health/dystonia-awareness-month-irpt/

Want to learn more about dystonia, related conditions, connect with supportive members, or donate to the cause?  Visit Neuronauts Now, Lori's Dystonia Awareness and Advocacy Nonprofit Organization by clicking here: http://www.neuronautsnow.org/

 

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The Walking Dead: Lady Migraine speaks on Michael of Migraine Discussions #MHAMBC

LadyMigraine is Elizabeth from Ohio, a chronic migraine and cluster headache sufferer, mom, partner and friend. Follow her blog (LadyMigraine.com) or on Twitter @headcase73.  The original posting of this article can be found here: http://ladymigraine.com/2014/06/12/the-walking-dead/

Cateye Sunglasses Send In YOur Frame fl-41 Axon Optics Natural Migraine Relief Blepharospasm

I haven’t been inspired by the AHMA Blog Challenge suggestions the last several days, but I have (obviously) been participating in the Photo Challenge. Today, what inspires me, or rather WHO, is Michael Fernandez of Migraine Discussions. Early on, he was frustrated by the lack of funding, research, and available information about this disabling illness, hence the name of his blog. He is also on Facebook and Instagram (Migraine Discussions) and Twitter (@mff181).

Migraine Discussions was the first migraine / chronic illness blog I began following when I moved my own blog to WordPress. He began following me as well and soon rewarded me with the Liebster Award, which meant so much to me. I began to feel that Michael was a friend. Then he received the devastating second diagnosis which explained all the nerve pain he’d been experiencing: the extremely rare, painful, and occasionally fatal Churg-Strauss Syndrome, of which I’d never heard but now know quite a bit about. On top of that, his daily excruciating migraines, which caused more vomiting than I’ve ever heard of, morphed into even more devastating cluster headaches. He lost mobility, lost his weight-trained body, lost his independence. Fortunately he has an extremely supportive family and a wonderful fiancee, but his suffering continues.

During a recent hospitalization for vasculitis (one of the horrible symptoms of CSS), he learned that his disease is going to progress and progress and end his life in 12 – 15 years unless he is able to participate in drug trials (and who knows if he will be able to, or if they will work). He was denied entry into a special vasculitis unit and is going to have to return home, no better than when he entered. Michael is only in his early 20′s.

All of this is tragic and sad… except for the fact that Michael is also a tireless advocate for migraine and headache disorders, as well as Churg-Strauss. He made it to Headache On The Hill. He won the WEGO Rookie of the Year new advocate award. He has published an e-book and manages to post at least something on his blog every day, sometimes powerful, pain-filled poetry, sometimes an article about new research or opinions on various health matters. Michael expresses both strength and despair, but he has not given up.

Today, I am inspired by Michael Fernandez. My blog post today for Migraine Awareness Month, in which sadly not nearly enough of us in this community are participating, is about the strength my friend has shown in fighting his illness, continuing to spread awareness, and writing something for us every day despite crippling pain. One lesson in this, for me, is that there are always those who have it worse. All of us in the chronic pain community insist that our pain is no worse than anyone else’s, it all sucks. But I know that even though I have recently developed clusters myself, and have a headache every day, nothing I go through (except for maybe that horrible Friday two weeks ago) compares to what Michael goes through daily. And he is STILL ADVOCATING. Still writing. Some days, I can barely manage to get out of bed and take care of my kids. Some days I just feel sorry for myself and want to hide. But then I think of Michael, and I get up, I push forward, I write, I advocate in small ways by at least spreading awareness, and I feel grateful for every pain-free moment.

Michael, from you, we could ALL (healthy or sick) learn a thing or two about strength. You are my hero. Thank you for continuing to fight for us, and for yourself.

-Elizabeth, AKA LadyMigraine

www.ladymigraine.com

@headcase73 on Twitter

#MHAMBC 

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Testimonial from British Columbia, Canada

Totems public domain stanley park vancouver fl-41 axon optics natural migraine relief

Testimonial from British Columbia, Canada

To Whom It May Concern,

On strong sunny mornings the first thing I reach fro are my AXONOPTICS.  They give me instant relief from the glare.  I had Cataract Surgery following which I developed astigmatism which resulted in severe sensitivity to bright light.

On the recommendation of our top Neuro-Optic Surgeon I purchased a pair of AXONOPTICS and now experience good relief from bright light and they are very helpful for night driving.  This product is still not available in Canada.

Yours Truly, N.M., British Columbia

(Editor’s note: Though we do not currently have any stores in Canada that carry our lenses, our lenses are available via mail order in Canada as well as any country to which the United States Postal Service ships.   Visit http://www.axonoptics.com/product-category/glasses-eyewear/   to order.) 

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The Perfect Pair: Fit, Style, and Coverage

One of our longtime friends recently asked a great question.  I answer this question often, but I've never written the response in text.  She asked:

" I am looking to order a pair of glasses soon, but have never worn glasses other than generic sunglasses. What information will I need as far as frame size and how do I find that?"

This is a really great question. Nobody thinks about their eyeglass size unless they've had prescription lenses. I recommend visiting a pharmacy or an optical shop and trying on frames. When you find a frame that fits well, note the measurements from the inside arm. Most people have a range of sizes that will fit them, so it will be a more accurate fitting if you find several pair that fit well. 
I've included four photos in this tutorial. The first one is this diagram of eyeglass measurements.

measurements

So what are the measurements and what do they mean? Look at this picture. You'll typically see the first two numbers on every pair. Sometimes you'll see the first and third measurements. You'll rarely ever see the fourth measurement. The measurements are in millimeters. One of the cool things about eyeglass measurements is that they use universal measurements instead of an arbitrary system.

Eye – Also known as the 'A' measurement, this is the lens width. The first number, it measures the width of each lens in millimeters. In the picture, the lenses are 50 millimeters wide. 

Bridge – Also known as the 'DBL' measurement, this measures the width across the bridge of the nose. You can be over, but you don't want to be under with this number, or the glasses will pinch. Make sure it is comfortable across the bridge and does not pinch. Other things to consider: do I like a solid bridge that rests directly against the nose, or do I like one with little silicone nosepads that prop it up? 

nosepads

To Nosepad or not to Nosepad, that is the question!

Temple: Measures length of the arms on the frame. It measures from where the hinge connects to the front of your glasses at the temple…all the way through the curved part behind the ear. You won't see much variation in this number, as most glasses are 130, 135, or 140. This number only matters if you have problems with the frame arms sticking out from the back of your head (too long), or cutting into the ear at the bend (too short). 

Height – also known as the B measurement – this is the height of the lens. You won't see this number on frames most of the time. If you need bifocals, this number is important because it will determine where it is practical to put your segment height (dividing line between bifocal top and bottom areas).

Another measurement you won't see is the 'ED' measurement, which measures diagonally across the lens. It's a shame that this measurement is not common, because it is a great indicator of lens surface area. If it has a high ED number, it's far more likely to have big lenses. The bigger the lens, the more coverage against peripheral light. I don't recommend any lens below 50mm ED, with 55 mm ED a good number to aim for. Anything 60 or above is ideal, but most of the frames above 60 are Aviators. That only helps if you like Aviators. (See Photo #3 In Comments Below). Don't be surprised if your optical shop can't provide this information, as very few people will ask for it. 

ed measurement

ED measurement is diagonal, which is high on bigger lenses. The Aviator frame is a favorite of many men and women, but people feel decisively about it. Choose a frame you love so you'll enjoy wearing your therapeutic lenses. Photo of man has our lenses in an aviator frame, woman does not have our lenses in her aviator frame.

My last piece of advice: Nothing bits the style, coverage, and fit match of a pair you've tried on in person. If you find a pair you love, consider buying it and sending it to us using our Send-In-Your-Frame service. This service is $30 cheaper than our cheapest with-frame options. This can end up costing less than buying a frame from us if you've already got one, or you love one under $30. Most eyeglass frames can be filled with our lenses. Only some sunglasses can be filled. If it has removable lenses or can be made with prescription, we can put our lenses in it. Most glasses fit into this category. If it is a cheap frame, it might have lenses that are fused directly to the frame. In that case, we can't fill the frame. This is most common with cheap sunglasses and novelty frames. 
Can't tell if the frame you own/bought is eligible? Take it to a local optical shop and ask. Alternately, you can ship them to our lab manager for a free consultation. It will cost about $6 to ship your frame to us within the U.S. Please email if you'd like a frame consultation from our lab. 

There are frame shape rules based on your face shape just like with haircuts. I like this particular article because it has drawings of the different face shapes with the different frames they're talking about: http://www.selectspecs.com/info/face-shapes/

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Eyeglass weight list for allodynic sufferers of migraine, blepharospasm, and light sensitivity (photophobia)

Allodynia is a symptom of many other conditions in which the body overreacts painfully to normal stimulus.  For people with migraine, it can often make eyeglasses too heavy.  It can also make contact points (where the glasses touch you skin) seem unbearable.  I'm quite allodynic myself . The (sumatriptan) injection, a very common rescue medication, was about $120 without insurance for a SINGLE use twinpack refill.  That's about the same price as a pair of our glasses, which can be used indefinitely until they wear out.  The pricetag on those sumatriptan shots is excruciatingly painful, but for an allodynic person the concept of touching a sharp needle to your skin can be equally daunting.  I used to toggle my sumatriptan injections with the nasal spray, which washes down the back of your throat and tastes terrible.  The bad taste isn't quite as bad as the needle stick when you're allodynic.

Because pressure and weight on the face is so important, our optics engineer Dr. Steve Blair has measured the weight of some of our frames for your comparison.  

All weights include lenses. Non-prescription Lenses weigh 0.5 ounces by themselves.  The weight increases with prescription type, lens material, lens size, and any special treatments applied.

 

flex ax 29 weight  FL-41

This is our lightest frame.

 

crx weight axon optics fl-41 natural migraine relief allodynic 

I do not recommend our Cover-RX for allodynic sufferers, as the weight of this fitover frame worn over your prescription is often too much to bear.  This frame is available in Medium Small, Medium, and Medium Large on our website, with Small, Large, and Extra Large available by special order.  The two most common sizes are Medium and Medium Large.   Add this amount to the weight of your current prescription to determine the actual weight on your face.  This style gives a moderate amount of peripheral light coverage, as the temples have a boysenberry filter instead of a typical hinge. 

Wrap7c weights

The Wrap7c is a wraparound frame by 7Eye, maker of ANSI Z87-rated safety glasses for motorcycling, industrial work, and more.  These frames have been recertified by the manufacturer with our lenses.  The Wrap7c comes in two sizes: Churada (Fits Small to Medium Heads) and Bora (Fits Medium to Large Heads). The AirDam, a patented removable foam insert, blocks peripheral light, dust, debris, and dry eye.  

Our new RocketHub frame, when released, will weigh 0.75 oz.

As we work to increase the size of the lenses a bit for more coverage, the weight will increase. (note that two large lenses together weigh nearly 0.5 oz, Rx even heavier).

More weight information:

Art deco 68: 0.99 oz.

PrimeS59: 0.98 oz.

Retro 301: 0.99 oz.

Star Pupil: 0.74 oz.

Peachy Keen: 0.85 oz.

Dendrite: 1.19 oz.

Aviator: 0.87 oz.

Mistral: 1.40 oz.

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Into the Light and Into the Water!

By Michael Fernandez

Today I used my tidal fit for the first time and as the people at Axon Optics would say “Stepped into the Light” for the first time in a long time. As you saw I posted about the installation of the pool over the past weekend and that was one big project, we were left with a few minor technical issue but luckily a man came earlier today to fix it all up now my Tidal Fit is operating 100% and it should for the price! Anyways I found the glasses really helped I was wearing a pair of outdoor tinted Bora frames similar to the Wrap 7C which is another favorite of mine, Anyways let me tell you why these were so beneficial.

Let me start by saying the darker outside tint significantly reduced any glare off the water allowing me to comfortably get into or look into the pool with its shiny pearl white interior. I also found the flosses didn’t slip off y face nor did they let much moisture in. I took out the padding to avoid getting it too wet and was perfectly fine without it. The advantage to taking it out is that I avoided foggy lenses due to sweating when doing the row bars and such. For me it truly is a workout and I find it absolutely exhilarating to e able to get in and do a bit of rowing to some music whenever I please. All we need to do now is build a wraparound table/ bar for drinks and for a stereo to sit on. After that I believe we will have the perfect aquatic therapy solution and I thank Axon Optics for allowing me to even use it by providing such great glasses to review.

Today I forgot my glasses on a ride to the bank and then to a medical supply store, I was in so much pain within the 25 minutes it took to be heading home from the bank that I was hitting my head asking my dad to drive home and he simply stopped for food and did drive home as I’d asked. Today I was also very snappy, frustrated, and didn’t really get anything done. I am really doing it all now but that’s due to the depression that comes with migraines! Anyways my trip was horrid as soon as I got home I got on O2 for a serious cluster headache and a migraine I took simple Advil for the migraine as the triptans can’t be used due to my vasculitis and none of the medications work for me. I never was ok heck I am still not ok that’s why I am awake at 2:30am typing an article and hoping to wake up at 7am to drive to a conference in Nashville, TN! If you’ve read my recent poetry you know I’m going to the 2014 Cluster Busters Conference in Nashville TN this Thurs-Sunday so I will be bus covering that! Thanks for reading and I hope you’ve enjoyed yet another of my articles!

step into the light water michael fernandez axon optics fl-41

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Step Into the Light

step into the light with Michael Fernandez fl-41 axon optics

by Michael Fernandez

Into the light I go

for the first time in a long while

I feel as if I were a child

this is all new to me I haven’t done it in ages

No wonder us headache disorder patients feel like we’re stuck in cages

 

So please help me to determine today

that it is time to shed our glasses away

and put in our tinted contacts finally

thanks to Axon Optics, now we can go out in the Sun and rock it!

 

Yep we can wear normal sunglasses

or more FL-41 tinted lenses over them for more protection

I appreciate this new form of light sensitivity prevention

Axon couldn’t have thought of anything better, come to mention

I’m glad to be a part of all of this and part of Axon’s team

our relationship has thus far been a dream

for they are very lenient with me

and understand weeks when I am held back by my disease!

 

So join me in supporting an important company within our community

let's help Axon grow so they can continue to help patients like me

by continuing to hire us and provide wages for the chronically ill

and for creating products that are so effective it simply thrills

they truly care about us and generously give out their extra product whenever I’ve asked, how amazingly kind is that?

they give back to the community is what I’ve learned

not only from individuals, but from caring companies too

I want to reflect them, and in turn help you.

 
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Ready-made and Custom Therapeutic tints for Photophobia Computer Glasses

Hi folks!  Virginia here.  Let's talk about the different tint types. We regularly offer four tints on our website: indoor, outdoor, transitions, and polarized.  All of our tints are made with FL-41 and provide 100% UVA/UVB protection.  

Small - 4 tints, transitions in full sun(2) Axon Optics FL-41 Natural migraine relief 

transitions-lenses-logo - Axon Optics Natural Migraine Relief FL-41 Lens

Indoor lenses are great for office use, grocery stores, fluorescent lighting,reading, cooking, and any indoor activity.  Perfect for people with mild light sensitivity, as the light pink lens provides a light level of protection.   The indoor lens looks like a classic tinted lens and will not draw attention in public.

Outdoor lenses have the strongest density of our tint on each lens, making them the most therapeutic.  They block the maximum amount of the irritating portion of the light spectrum while mainting visibility.  These cranberry-colored lenses are great for outdoor use, bright lights, or extreme photophobia.  Once your eye adapts to the redness of the lens, everything you see will be brighter than if you'd been wearing sunglasses.  This is because the lens is blocking only a portion of the light spectrum, unlike the full light blockage of a pair of sunglasses.  Try our outdoor tint in a sunglass frame for maximum coverage.

Tint Comparison indoor outdoor axon optics fl-41 natural migraine reli

 

Specialty Tints: Transitions and Polarized lenses are always available.  Please allow one addiitional week processing time in addition to any other specialty lens treatments selected (prescription, premium coatings, etc.)

polarized transitions axon optics fl-41

Transitions Lenses: A lighter rose-tinted lens transitions to a warm grey when exposed to sunlight. Our transitions lens is lighter than our indoor tint, and darkens to a grey which is lighter than our outdoor tint. A great choice for those who don’t want to have to switch pairs when switching locations. Not recommend for those with extreme photophobia. Please allow extra processing time to make transitions lenses.

Polarized Lenses: Our darkest lens in terms of total light blockage. A dark grey polarized lens augmented with a thin coating of our tint provides moderate light protection.  A good choice if you’re extremely photophobic and already know polarization works for you. If you’ve never had polarized lenses before, we recommend first trying a non-polarized non-prescription pair of our outdoor lenses. 

As with all polarization, they cause distortion when viewing electronics, and make some people feel sick. (This is standard with all polarization, not exclusively our lenses.) If you’ve worn polarized lenses before, then you’ll be fine. If you have not worn polarized lenses before, we do not recommend purchasing your prescription lenses with polarization. Non-prescription polarized lenses can be exchanged, but exchanges take time – time you don't want to wait during a migraine.

Custom Tints: Is our indoor tint too light?  Our outdoor too dark?  Nothing dark enough?  Not seeing what you need?  We offer three custom tints for those who need something a little different.  These are all special order, so try to order a month before any upcoming trip!

Custom Tinting Axon Optics FL-41 Natural Migraine Relief

Ultra Light (Half-strength): Our Ultra Light (Half-Strength) tint is the lightest lens we offer.  It has the thinnest possible density of tint.  The more density, the more effective the tint.  This is a great tint for folks who can't wear our regular indoor tint due to the color.  For mild light sensitivity only.

Halfway (In-Between): Our Halfway (In-Between) tint is the perfect solution for those who find our indoor tint too light, but our outdoor tint too dark.  Much like the fairy tale heroine Goldilocks, you'll find this tint to be 'Just Right'.

Ultra Dark (Max Strength): Our Ultra Dark (Max Strength) is only slightly darker than our outdoor tint.  This is the maximum amount of tint that the lens can accept.  Only recommended for those desperate for relief who have found our outdoor tint too light.  

Together, they look quite beautiful.

all 7 tints Axon Optics FL-41 Natural Migraine Rel

 

 

 

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What’s The Difference between Computer Glasses and Readers?

Axon Optics computer glasses eyestrain

A little information for those wondering about the difference between computer glasses and readers:

Computer Glasses: Relieving Computer Eye Strain

How to Read an Eye Prescription

The basic difference is the distance.  A reader lens is just the right distance for reading books, whereas a computer lens is perfect for reading the screen.  The computer screen is usually a bit farther away than a book is (about 20 to 26 inches versus 12 to 14 inches), so the magnification is a bit lower than for reading glasses. Typically, the reduction is by about 1 (i.e. +3 for reading, +2 for computer), but an optometrist should determine the magnification needed based on the distance between the eye and the screen of the patient. While this is not an adjustment you should make at home, but this guide is helpful in understanding the process:

Computer Vision Reading Eye Glasses Chart

Our lab carries specialty computer progressive lenses from Shamir, which are different than normal bifocals/progressives.

 

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Axon Optics’ Mistral7m Review

Axon Optics Mistral7m FL-41 Therapeutic eyewear natural migraine relief

 

By Michael Fernandez of Migraine Discussions

 

Hello folks, you’ve all seen me review multiple pairs of Axon Optics lenses and frames. I’ve even done comparisons for them with the typical glasses you get after surgery on your eyes called “solar shields” which I found are very cheaply made compared to Axons glasses. In fact I rarely remove them from my face besides to clean them or swap them for a more suitable pair of Axon Optics lenses. Lets get to the point though today I’m reviewing the Mistral 7M’s worn by my fiance and mother for a few weeks each to get a good feel for the product. They each found the Mistrals to be fascinating, but are they worth the $169 price tag? This article should answer that question by the time you’re done reading and if I haven’t please feel free to ask any questions you might have!

 

Comfort

These glasses rest well on the bridge of one’s nose and aren’t heavy, so they rarely leave a line or indentation on one’s face. They’re shaped well and have small raised areas to block peripheral light that don’t interfere with your vision or leave any odd markings on one’s face. They can even be worn in a swimming pool without issue as I wore my Bora frames and my fiance wore these frames from Axon on our tip to my grandfather’s yacht club and then after a ride on the boat took a dip in the pool. We both kept our glasses on for light sensitivity and got tons of compliments from the many seniors frequenting the pool. I handed out a lot of Axon Optics cards at this place! It isn’t like we were looking to advertise either we just wanted a nice calm swim and it turned into a small lecture on Axon Optics and the FL-41 tint for light sensitivity.

 

Features

- The Mistral 7M has a wraparound style for extra coverage in the sun.

-  It comes in the following colors: Tortoise, Glossy Black, or Chocolate Crystal

- The glasses can be prescription if you need it. Just send a copy of your RX with the order.

- They come in the following shades: Indoor, Outdoor, Transition, and Polarized, Extra Dark.

- Can come with up to 2 premium coatings: Anti-Smudge and Anti-Glare.

 

Price

These glasses start at $169 a hefty price for most people but some insurances cover this nowadays and if they save you even one trip to the ER you’ve already made your money back multiple times over. Heck you make your money back several times over just in the ambulance en route to the hospital. So I can totally justify that price when you look t this as a medical device and therapeutic tool and not simply another pair of glasses. This is an invaluable tool for anyone with photophobia and I cannot see anyone giving up the comfort these lenses bring for the price.

 

Conclusion

These glasses look normal and actually quite sexy on women if I do say so myself. I had to ask my fiance if these were the Axon Optics pair or her Ray Bans as I personally couldn’t tell the difference. I asked my mom the same question where she’d bought the glasses then she reminded me I gave them to her and that she was driving with them on to prevent more migraines. This warmed my heart as I found a small way to pay back my mother for all the care and hospital visits she has been through with me, I couldn’t ask for a better immediate family or a better fiance. Thank you for reading and I hope you’ll go out and try a pair of Axon Optics glasses now they really are worth your time to give a test run as they truly work I’m not just pulling your leg here. I hope you all have a pain free week and best wishes to all of my readers!

 

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