by Lori Raines, Founder of Neuronauts Dystonia Awareness and Advocacy Nonprofit Organization. To learn more about Dystonia, please visit their website here.
I KNEW I needed prescription glasses…. Again! The “amazing” Lasik surgery I had in 2007, almost three years before I developed blepharospasm and the sudden onset of a neuromuscular disorder called dystonia, went completely down the drain.
I need to back up this story a bit though, I am about to get ahead of myself. As the symptoms of dystonia progressed, like the horrors of bright store lights on my nervous system, migraines from intense muscle spasms from my back to my neck to behind my eyeballs, and worse for me, computer glare, I needed some relief! I had started a support group on Facebook for all movement disorders called Neuronauts and quickly knew I couldn’t be on the computer as much as I was because my eyes were screaming at me for help! Red, puffy, scratchy, twitching, watering eyes and administering a growing group was awful…And then I saw Axon Optics on Facebook too.. My eyes were begging me to find out everything I could about this therapeutic “super tint” in the FL-41 Glasses.
When the magical Axon Optics FL-41 Transition lenses with Anti-Glare Anti-Smudge coating glasses arrived, they never left my face. I wore them the second I opened my eyes until I had to close them. I loved them and everything I had read and had been answered was true! I told everyone who suffered from the same issues as I did and more. Then it happened. It seemed I went back to being blind as a bat overnight. As much as I loved my glasses, they didn’t help me see five feet away or farther. I couldn’t believe it.
I found way too strong prescription glasses from a thrift shop just to drive and see signs and not be a danger to society! They are awful and make my brain hurt. And my HAIR! I had to get to my eye doc quickly! My optometrist is three hours away from where I live now. I finally had my appointment last week. It was a long drive but found out it was true, I needed new glasses.
I saw THE frames there. I tried them on and they fit great, but they were $240! I can always find them at least half price online being savvy with Google and I did! Because I KNEW I only wanted Axon transition lenses and I knew about the “Send in Your Frame” option already, (I was going to use the ones I already have but these have more coverage for a prescription and are classic cat eye style and just…cool!) I am starting to feel super excited and smart. I sent in my script to Axon, I ordered the new frames off the internet, I’m making this thing happen and the thrift store glasses will be history! My eyes won’t HURT anymore! Feel the momentum?
Then….The email….Virginia at Axon Optics writes: “What’s your PD?” (Pupillary Distance)
I said,”I don’t know. I’ll call my eye Dr. now!” Well, they don’t measure that UNLESS the frames are bought AT THEIR OFFICE. (The distance between both pupils is kind of important info for me since I had lazy eye as a baby and I am now almost banned from interstate driving, as my eyes close and cross and I’m never in an actual lane at times…I am happy Axon requires all measurements to proceed, they want them perfect and so do I.)
So THEN, I need a REFERRAL, to a NEW Dr. here, wait for a new patient appointment, JUST so I can have the “PD” measured and THEN I could get new glasses…
This whole process just went from 3 weeks to 2-3 months. I cried.
I thought why can’t I just hold a ruler on my face and take a picture and count.!..but it doesn’t work that way. I asked this question in the support group and one of the members sent me this picture of a ruler and said “Here!”.
Then…in my total disappointment, I had a smart moment! I called my eye office and asked, “What was my PD with my last pair of reading glasses I got a couple of years ago? (The PD doesn’t really change! ) She put me on hold and came back with the measurement I needed! In a split moment, the 3 weeks to 3 months went to 3 weeks again! I am waiting right now for the internet frames to arrive so I can send them in. It’s excruciating. I want to pull my hair out, but with bad glasses on top of my head half the time, it’s already happening.
I am SO CLOSE to HAPPY and having exactly what I need, want, match “my style” AND have the
Axon Optics FL-41 MAGIC back!