Hi, my name is Lori. I have Generalized Dystonia and Blepharospasm. I also am glued to a screen of some sort for 8-10 hr days, as I am an advocate for dystonia awareness and am the Administrator for a large support group on Facebook. It’s not just the group which keeps me with my face constantly looking at my phone and laptop – I’ve spent months developing social networking sites as well as making a website from scratch too!
I’ve had my transition Axon glasses for a few months now and I have written on Amazon about how amazing they are… Well, I’m not finished saying how amazing they are….a few days ago I forgot to have my glasses on while I was on a 10-hour website making spree. That night my eyes were bright red, all night they were burning and watering so badly. I never slept and by morning both my eyes were swollen shut the entire next day. Which meant no work….I absolutely cannot work or use a computer without my glasses, they are necessary for me to do what I need to do and I need them from morning to night.
At first, I gushed about light sensitivity and how soothing they are to my eyes, my nervous system and being able to handle horrible bright stores. Well now it’s way more than that! Without these glasses, I cannot help people. I cannot run a growing group AND a new Dystonia Awareness Social Media Nonprofit organization without them. These glasses literally allow me to provide education to the world, media outlets for others who suffer from dystonia to use for their own benefit and jobs for people who want to be active in advocacy as well.
When glasses affect over 1200 people a day and hopefully thousands one day, that’s serious. To pursue my calling and overcome my disability to help others, something as simple to others like a pair of glasses, means the world to me and everyone who benefits from my ability to sit behind a computer screen.
Thank you for helping me be able to try to make a difference in this world of Dystonia and Blepharospasm.